WHAT TO ASK YOUR DOCTOR
Whether you’re newly diagnosed or have had
myelodysplastic syndrome (MDS)
for a while, it is important to maintain good communication with your doctor and
other members of your healthcare team. Don’t be afraid to share your concerns and
ask questions about MDS. Being open and willing to learn may help you effectively
manage your illness.
You may find it helpful to keep a journal,
recording things like symptoms
and questions you might have for your healthcare team. If you’re having trouble
coming up with questions, here is a list that may help you get started:
- What type of MDS do I have, and what does it mean?
- How did I get MDS?
- Can I give it to other people?
- Will my children get it?
- What else can I expect with a diagnosis of MDS?
- How are the different types of MDS treated?
- When will my treatment start?
- Does my treatment cause side effects?
- Will I develop leukemia?
- How long can I live with MDS?
- Can I participate in clinical trials?
- How do I find out about clinical trials?
- Where can I get more information about MDS?
Maintaining communication with your healthcare team throughout the course of your
illness is a great way to stay informed and take control of MDS.