Caring for a loved one who is not feeling well can be a lot of work. This section of the Web site is for people like you who are caring for someone with MDS.
How can I help my loved one prepare for treatment?
You can help your loved one prepare for treatment by being supportive of his/her needs. You can help him/her organize what he/she needs to bring to the treatment center and be there to listen to his/her needs and concerns.
How can I help my loved one after treatment?
Your loved one may have side effects from treatment. You can help by watching for a fever, signs of an infection, or signs of your loved one bleeding or bruising more easily than usual. These are signs of low blood cell counts and could be serious. If you notice any of these signs, call your loved one's healthcare provider right away.
I sometimes need a break from taking care of my loved one, but I feel bad. What should I do?
It is common for caregivers to feel tired or upset and to want time to themselves. After taking care of your loved one, you have very little time left to take care of yourself. It's important to get your rest, eat right, and ask for help. There are resources available to help you in caring for your loved one.
What resources are available to support me?
As a caregiver, you are one of many people who help to take care of a loved one. There are many support groups that you can participate in to meet other people who share your experiences. Talk to your loved one's healthcare provider about resources in your area that may be able to help you.